lifestart.org.au Lifestart charity helping early childhood intervention and school age services

Links

Lifestart, a registered charity, provides early childhood intervention and school aged services to children with additional needs, including Down syndrome, Autism Spectrum Disorder, global developmental delay and rare genetic disorders. Lifestart provides a family centred approach to meeting the needs of children living with disability and their families.  It is based on the concept of partnership with children, families and carers to assist and empower them to participate meaningfully and inclusively in our community.

Useful Links

Autism
Autism is a lifelong developmental disability which affects language, social development, cognitive and sensory processing.

Autism Spectrum Australia (ASPECT): http://www.autismspectrum.org.au/

A4 - Autism and Aspergers Advocacy Australia: http://autism.anu.edu.au/A4_Home.html

A wide number of articles about Autism: http://www.hunter.apana.org.au/~cas/

Families for Early Autism Treatment: http://www.feat.org/

Wendy Lawson’s homepage: http://www.mugsy.org/wendy/index2.htm

Cure Autism Now - research into autism: http://www.canfoundation.org/aboutcan/aboutcan.cfm

Angelman Syndrome
A National Foundation and the only Australian Charity for Angelman Syndrome.
Foundation for Angelman Syndrome Therapeutics
E: info@cureangelman.org.au
W: www.cureangelman.org.au

Achondroplasia (short stature)
Achondroplasia is a genetic condition that results in very short stature.

Short Statured People of Australia: http://www.sspa.org.au/sspa.htm

Little People America: http://www.lpaonline.org/index.html

Asperger Syndrome
Asperger Syndrome is an autism spectrum disorder affecting speech, social development and cognitive and sensory processing.

OASIS: Online Asperger Syndrome Information and Support: http://www.udel.edu/bkirby/asperger/

Asthma
People with asthma have sensitive airways in their lungs, which can make it hard for them to breathe.

http://www.asthmaaustralia.org.au/

ADHD
Individuals with Attention Deficit Hyperactivity Disorder and Attention Deficit Disorder have difficulty concentrating and attending to task.

A listing of Australian support groups for ADD/ADHD: http://www.adders.org/ausmap.htm

Articles, resources, and chat about ADHD/ADD http://www.understandingadhd.com/

Behaviour Support
Here are some websites focusing on helping families with effective behaviour strategies.

Using Specific Praise: http://www.chp.edu/parents/08c_behaving.php

Positive Behavioural Support (PBS):
http://www.ukc.ac.uk

Brain Injury
Brain injuries are the result of sustained trauma where the brain does not get enough blood or oxygen.

Brain Injury Association of NSW: http://www.biansw.org.au/

Communication
Here are some websites focusing on different ways to communicate. ISAAC: International Society for Augmentative and Alternative

Communication: http://www.isaac-online.org/

PECS: Using the Picture Exchange system: http://www.pecs.com/

Boardmaker: http://www.mayer-johnson.com/software/Boardmkr.html

Using Visual Supports: http://www.angelfire.com/ky/touristinfo/index5.html

Using Signs with children with Down syndrome: http://www.altonweb.com

Using signs with babies with and without disabilities: http://www.babysigns.com/

Cerebral Palsy
Cerebral Palsy is a disorder of movement control, which results from damage to part of the brain.

The Spastic Centre: http://www.thespasticcentre.org.au/

Cystic Fibrosis
In Cystic Fibrosis there is a problem with the protein that controls the movement of salt in and out of the cells, affecting the lungs and digestive systems.

http://www.cysticfibrosis.org.au/

Dads
Here are some websites focusing on supporting fathers.

The Father’s Network, supporting fathers of children with a disability: http://www.fathersnetwork.org/554.html

Mens Line Australia - supporting fathers through phone counselling (1300789978), information and advocacy: http://www.menslineaus.org.au/

Disability/Special Education
Here are some websites about disability and/or special education.

Women with Disabilities Australia: www.wwda.org.au

ERIC website: an enormous storehouse of articles on a wide range of issues and interests. http://www.askeric.org

E-BILITY (Directory of Disability Links) http://www.ebility.com.au/

Ideas for teachers especially directed towards Autism: http://www.tinsnips.org/

Ideas for special education pre/primary: http://www.do2learn.com/

Ideas for speech activities. http://www.speechteach.co.uk/

Disability resources on the net http://www.disabilityresources.org/

Disability Online (an international site) http://www.disabilityonline.com/

Council for Exceptional Children: a large storehouse of articles about Special Education. http://www.cec.sped.org

Down Syndrome/Trisomy 21
Down syndrome occurs when there are 3 copies of the 21st chromosome instead of 2.

Down Syndrome NSW: http://www.dsansw.org.au/

A fun site (with cool t-shirts): http://www.unomas21.com/

A positive site for new families of a child with Down Syndrome: http://www.downsyn.com/

Early Childhood Intervention
Here are some websites about or offering Early Childhood Intervention Services.

Learning Links offers a family-centred ECI program for kids with disabilities or learning difficulties: http://www.learninglinks.org.au/

Family Support
Here are some websites focusing on support for the family or carers of people with a disability.

Carers Australia: http://www.carersaustralia.com.au/

The Family Village: links and resources for families of children with a disability: http://www.familyvillage.wisc.edu

Eparent.com; an online magazine for parents of children with a disability: http://www.eparent.com/

Fragile X
Fragile X is a developmental disorder caused by a mutation in the X chromosome.

Fragile X association of Australia: http://www.fragilex.org.au

Genetic Disorders
Here are a few websites covering very rare genetic disorders.

Trisomy 13, 18 and related disorders: http://www.trisomy.org/

Rare genetic disorders in children homepage: http://www.kumc.edu/gec/support/

Grandparents
Here are some web pages supporting grandparents of children with special needs.

A UK webpage about Grandparents: http://www.cafamily.org.uk/grandparents.html

Hearing Impairment
Here are some Australian sites focused on hearing impairments in children.

The Shepherd Centre: http://www.shepherdcentre.com.au/

The Deaf Society of NSW: http://www.deafsocietynsw.org.au/

Discussion group for parents of children with hearing impairments: http://www.aussiedeafkids.com/

Intellectual Disabilities/Developmental Delay
These websites focus generally on intellectual disability.

The ARC - providing information and advocacy: http://www.thearc.org/

NSW council for intellectual disability: http://www.nswcid.org.au/

Inclusion International: http://www.inclusion-international.org/

Learning Difficulties
These sites focus on helping children who have specific difficulty with numeracy and literacy.

A huge site with a range of links and articles relating to Learning Difficulties: http://www.ldonline.org

SPELD: Specific Learning Difficulties association of NSW: http://www.speldnsw.org.au

CIERA: Centre for Improvement of Early Reading: http://www.ciera.org/

Nutrition
These websites discuss issues in nutrition for children with disabilities.

For all disabilities: http://www.pediatricpt.com/articles/eating.htm

Diet in children with Autism: http://depts.washington.edu/nutrpeds/faq/diagnosis/autism.htm

Prader-Willi Syndrome
Prader-Willi Syndrome is a rare genetic disorder affecting learning, behaviour, and eating.

Prader Willi Syndrome Association: http://www.pwsausa.org/

Siblings
These websites support siblings of children with a disability.

Siblings Australia: http://www.siblingsaustralia.org.au

Spina Bifida
Spina Bifida is a neural tube defect which occurs in utero.

The Northcott Society: http://www.northcott.org.au/

Special Olympics
The Special Olympics trains athletes with intellectual disabilities to compete internationally.

The main Special Olympics website: http://www.specialolympics.org/

Visual Impairments
These websites focus on the needs of children with visual impairments.

The Royal Blind Society: http://www.rbs.org.au/